Neurodevelopmental Changes and Emotional Burden of the Primary Caregiver: A Case Report of Robin Sequence, Corpus Callosum Dysgenesis and Comorbidities - Abstract
The aim of this study was to describe the evolution of the neurodevelopment of an atypical Robin Sequence clinical case and the impact of emotional burden on the primary caregiver. Female participant, age 01 years and 08 months, with Robin Sequence, typical characteristics and global developmental delay. Two development assessments were
carried. The results showed an evolution of adaptive behavior in the domains of interpersonal socialization, personal autonomy, receptive and expressive communication. Five psychiatric indicators of body activity showed an improvement. Acquisition of sentence comprehension and beginning of primitive imitation activities. The caregiver’s emotional burden showed a reduction in indicators and degrees of intensity. The child’s repertoire of skills, although showing a restricted evolution, showed the importance of early diagnosis for rehabilitation and minimizing the impact on the family routine and the stressful condition of the primary caregiver.