When I Die…Parents of Children with IDD - Abstract
A brief summary of a parental bereavement research project for persons with intellectual/developmental disabilities (IDD) is provided. The author advocates for not just more research but pleas for palliative care and hospice providers to pay focused attention to family members with IDD. Recommendations are made for palliative, hospice and bereavement providers to better fulfill our obligation to these underserved family members.