Child Life Specialist Videoconference Support of Siblings of Pediatric Stem Cell Transplant Recipients: A Pilot Study - Abstract
Objective: To offer child life services conducted by certified child life specialists (CCLS) to siblings of children undergoing hematopoietic stem cell transplantation (HSCT) through videoconferencing. Methods: The study focused on the 100 days following transplant, during which non-donor siblings engaged in virtual sessions with a CCLS. Interviews were conducted with siblings and parents post-intervention to assess its effectiveness. Qualitative analyses of the interviews were done. Results: Families expressed contentment with the intervention (64%) and an interest in maintaining or expanding the program. Sixty percent of siblings found
the intervention helpful, emphasizing the value of 1-on-1 support and sharing crucial medical information. Positive outcomes included increased empowerment, engagement in therapeutic activities, coping mechanisms, and improved communication. Privacy concerns led to limited parental involvement, but both parents and siblings acknowledged the importance of the intervention in conveying necessary information. Challenges such as connectivity issues and scheduling conflicts were noted, suggesting potential areas for improvement. Discussion: The study underscored the significant impact of remote interventions in offering vital support and information to siblings during the intensive HSCT process. The study also emphasized the negative impact on siblings without focused services and stressed the importance of providing inclusive support mechanisms, especially when access to such resources is restricted at home.